Almost 25 years ago, two parents, with only one thing in common – their children had both recently received a rare chromosome disorder diagnosis – found each other through a magazine article. Even though told by their doctors, that these disorders were so rare, so unusual - that they were probably the ‘only ones out there’ – they did not give up hope.  Soon they located other parents.  And shortly thereafter, Chromosome Disorder Outreach was born. Over the years, CDO has helped thousands of individuals and families, providing emotional support and the latest in research information.

Browse our website to learn more about very rare chromosome disorders. And please let us know if we can help you too. 

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